SOURCE: 3BL Media, LLC
Much has changed over the last 20 years for people with cancer. Pat Elliott describes how far things have come for patients while also shedding light on how more improvements are still necessary. With Pat’s permission, I am excerpting an email she shared with Brad Tritle who is one of my co-editors on the upcoming HIMSS book “Engage! Transforming Health Care Through Digital Patient Engagement”. The following is a brief profile of Pat:
In her email, she outlined the dramatic improvements she’s experienced with her recent experience. It’s striking that virtually all of the improvements have come from sources outside the healthcare systems. Astute healthcare leaders recognize that the next wave of improvements can and should come from the healthcare providers themselves. Those leaders will gain a major advantage if they adapt (see Xboxification of Healthcare and Healthcare’s Age of Agility for ideas on fostering innovation). Here’s how Pat describes the differences (most good, a few not so great)…
As I was thinking about my own experiences, and the way healthcare professionals treat patients, I realized that most seem to think we are still in the model that existed with my first cancer diagnosis – a time when patients did what they were told and didn’t have other resources for information or support. E-Patient Dave calls that the car wash approach – you go on the conveyor belt and get shoved through, with everything happening to you as you are passively moved along. It’s a good description.
With the second cancer I have had access to information and resources, through the Internet, that enabled me to understand my cancer and treatment options, get the follow-up information needed to recover and move forward, avoid medical mistakes, feel less isolated even though what I had was very rare (many CML patients have never met another human being with CML) and, generally, all of these things supported the healing process and a return to more of a normal life. A cost analysis would likely also show this has a cost savings benefit for the healthcare system too.
Differences with the second diagnosis include:
With Pat’s deep experience, she made 10 suggestions for providers who want to improve that I have excerpted below with some annotation in italics.
Providers looking to better understand how to weave patients into the process have many resources. One of the organizations worth joining is the Society for Participatory Medicine.
Dave Chase is the CEO of Patient Relationship Management company, Avado, is the 1st cloud-based EHR-agnostic patient portal built for healthcare providers in accountable models such as medical/health homes, accountable organizations, etc. Avado was selected by 22 pioneering healthcare providers in NY state for a statewide program pioneering accountable models.
This post originally appeared on Forbes.com. Posted with permission of the author.
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